Weston

We've been up at Primary Children's Hospital this week seeing some specialists about Weston's head. He's had a ridge down his forehead and no soft spot for several months now. His pediatrician wanted him to be seen by a specialist, so here we are. Turns out he has metopic synostosis, meaning the suture down his forehead, along with his soft spot, has prematurely closed. This wasn't a huge surprise to us, we've suspected it for a while now, and have done plenty of research on the subject.

The picture above is him getting a CT scan. I was trying to keep him happy and still long enough for them to get a good picture. Luckily it was successful. Otherwise, he would have had to be sedated.

We still are waiting to see the neurosurgeon on Monday, but from what we've been told so far, it looks like he'll need surgery. It's quite an extensive surgery, taking 4-5 hours. They cut from one ear to the other to expose the skull. Then they'll cut what needs to be open and reconstruct the skull. Sounds horrible to me, but apparently it's a fairly routine surgery. This condition is present in about one in every one thousand babies.

While it's certainly not going to be fun, there could be worse things. I'm grateful that we caught it early enough and that it can be corrected. If left untreated, brain damage or developmental problems could occur, as well as the head deformity.

I'll post any updates as they occur. Please keep him in your prayers.